Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods
Includes bibliographical references (page 19-21).
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© 2015 Action for Disability Regional Rehabilitation Centre
2016
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| Accesso online: | http://hdl.handle.net/10361/5230 http://doi.org/10.5463/DCID.v26i2.414 |
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10361-52302019-09-30T03:06:45Z Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods Zuurmond, Maria A Mahmud, Ilias Polack, Sarah Evans, Jenny James P Grant School of Public Health, BRAC University Disabilty Children with disabilities Quality of life Caregivers Bangladesh Includes bibliographical references (page 19-21). Cerebral palsy is the most prevalent health condition linked to childhood disability in Bangladesh, yet support and rehabilitation for this group is limited. Understanding the impact of cerebral palsy at family level is important forthe development of appropriate interventions. Purpose: This study aims to explore the impact on the lives of caregivers of children with cerebral palsy. Methods: The study used mixed methods. The PedsQL™Family Impact Questionnaire Module was administered to the main caregivers in 135 families with a child with cerebral palsy and 150 families that did not have a child with a disability, from the same villages. In-depth interviews and observations were undertaken with 10 families, and 2 focus group discussions were conducted with representatives from 14 parent/caregiver groups. The project was conducted from April 2011- April 2013. Data collection was from September 2011- Dec 2012. Results: The mean overall and sub-scale PedsQL™ scores were significantly poorer (p<0.001) for caregivers of a child with cerebral palsy compared to scores from families that did not have a child with disability. Caregivers reported high levels of stress, anxiety, isolation, stigma, physical tiredness, and lack of time to complete everyday tasks. Knowledge and understanding about cerebral palsy was generally low. Conclusion: This study demonstrates the particular vulnerability of families of children with disabilities in resource-limited settings. It reveals the extent of the impact on the caregivers. Interventions therefore need to be holistic, addressing the well-being and empowerment of caregivers as well as children. Maria A Zuurmond Ilias Mahmud Sarah Polack Jenny Evans Published 2016-05-05T15:20:55Z 2016-05-05T15:20:55Z 2015 2015-06 Article Zuurmond, M. A., Mahmud, I., Polack, S., & Evans, J. (n.d.). Understanding the Lives of Caregivers of Children with Cerebral Palsy in Rural Bangladesh: Use of Mixed Methods, 26(2), 5–21. http://doi.org/10.5463/DCID.v26i2.414 22115242 10294414 http://hdl.handle.net/10361/5230 http://doi.org/10.5463/DCID.v26i2.414 en http://dcidj.org/article/view/414 BRAC University Journals are protected by copyright. They may be viewed from this source for any purpose, but reproduction or distribution in any format is prohibited without written permission. 17 pages application/pdf © 2015 Action for Disability Regional Rehabilitation Centre |
| institution |
Brac University |
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Institutional Repository |
| language |
English |
| topic |
Disabilty Children with disabilities Quality of life Caregivers Bangladesh |
| spellingShingle |
Disabilty Children with disabilities Quality of life Caregivers Bangladesh Zuurmond, Maria A Mahmud, Ilias Polack, Sarah Evans, Jenny Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| description |
Includes bibliographical references (page 19-21). |
| author2 |
James P Grant School of Public Health, BRAC University |
| author_facet |
James P Grant School of Public Health, BRAC University Zuurmond, Maria A Mahmud, Ilias Polack, Sarah Evans, Jenny |
| format |
Article |
| author |
Zuurmond, Maria A Mahmud, Ilias Polack, Sarah Evans, Jenny |
| author_sort |
Zuurmond, Maria A |
| title |
Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| title_short |
Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| title_full |
Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| title_fullStr |
Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| title_full_unstemmed |
Understanding the lives of caregivers of children with cerebral palsy in rural Bangladesh: use of mixed methods |
| title_sort |
understanding the lives of caregivers of children with cerebral palsy in rural bangladesh: use of mixed methods |
| publisher |
© 2015 Action for Disability Regional Rehabilitation Centre |
| publishDate |
2016 |
| url |
http://hdl.handle.net/10361/5230 http://doi.org/10.5463/DCID.v26i2.414 |
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